Hemophilia and Me.
The following were originally posted on my column Hemophilia and Me for BioNews and Hemophilia News Today.
Watching the ‘Unspeakable’ TV Series About Tainted Blood Tragedy
The Canadian miniseries reminds this columnist of her own difficult past.
Talking Women and Hemophilia With Community Leader Kim Phelan
Phelan, the COO of the Coalition for Hemophilia B, shares valuable insight
Living With Hemophilia, I Am Both Thankful and Heartbroken
A sentiment to describe post-hurricane destruction also works for life with hemophilia.
The Hemophilia Community Supports Us After Hurricane Ian
Offers of housing, and medication help make a difference for evacuees from disaster/
With Hemophilia, I Needed Extra Preparations for Hurricane Ian
Columnist Jennifer Lynne offers emergency tips for those with bleeding disorders.
I’m Waiting No Longer to Start a Fitness Program and Get Into Shape
Columnist Jennifer Lynne has spent most of the year wondering how to start exercising.
Milestones Have Resonance When Living With Hemophilia
A columnist considers life when a family member dies near her birthday.
How Shared Decision-making in Healthcare Has Improved My Well-being
Healthcare is a team effort, and a patient's voice is critical, writes columnist Jennifer Lynne.
Biting Your Tongue Can Lead to ‘Stranger Things’ With a Bleeding Disorder
Columnist Jennifer Lynne responds to a bizarre bleeding episode
Iron Infusions May Be Beneficial for Women With Hemophilia
How columnist Jennifer Lynne tackled her iron-deficiency anemia
Heading Back to School Requires Planning for Girls With Hemophilia
How to design a hemophilia care plan for school
I Still Have Questions About Investigational Gene Therapy for Hemophilia B
Do you have questions about investigational gene therapy
Health Expert Weighs In on Ongoing COVID-19 Threats
A discussion with Dr. Frank James, public health expert
How I Manage the High Expenses of Hemophilia
Several programs have helped me keep my health expenses under control.
Traveling With Hemophilia: It Turns Out Mom Does Know Best
I gave in to my 79-year-old mother’s pleas to travel from Florida to the Midwest
An Open Letter to Newly Diagnosed Women With Bleeding Disorders
Women with hemophilia are still very misunderstood outside of the bleeding disorder community.
