Hemophilia and Me.
The following were originally posted on my column Hemophilia and Me for BioNews and Hemophilia News Today.
How your hemophilia experience is shaped by when you were born
New Hemophilia treatments, refined techniques, and better scanning play a role
Why more women with hemophilia are needed in clinical trials
More targeted research should lead to greater healthcare empowerment for all
Hemophilia Makes the Severity of My Injuries Unpredictable
Even a minor injury can lead to swelling and bleeding.
How Hemophilia Treatment Centers Have Benefited Me
Receiving care at a hemophilia treatment center is essential, this columnist says
A Tale of Struggle: How One Patient Advocated for an Implanted Port
In an interview, Kendall Fitzpatrick describes her reasons and methods for getting care.
With Hemophilia, I Needed Extra Preparations for Hurricane Ian
Columnist Jennifer Lynne offers emergency tips for those with bleeding disorders.
How Shared Decision-making in Healthcare Has Improved My Well-being
Healthcare is a team effort, and a patient's voice is critical, writes columnist Jennifer Lynne.
Biting Your Tongue Can Lead to ‘Stranger Things’ With a Bleeding Disorder
Columnist Jennifer Lynne responds to a bizarre bleeding episode
Iron Infusions May Be Beneficial for Women With Hemophilia
How columnist Jennifer Lynne tackled her iron-deficiency anemia
How I Manage the High Expenses of Hemophilia
Several programs have helped me keep my health expenses under control.